TK2d
resources
Because TK2d is so rare, creating and becoming a part of the community is important to help you stay informed, connected, and motivated.
Below are links to patient advocacy groups and community pages, as well as sites that have information about TK2d and can help you discuss and understand TK2d and mitochondrial disorders.
We hope to add more information here as new resources are created, so be sure to bookmark this page and check for updates.
Because TK2d is so rare, creating and becoming a part of the community is important to help you stay informed, connected, and motivated.
Below are links to patient advocacy groups and community pages, as well as sites that have information about TK2d and can help you discuss and understand TK2d and mitochondrial disorders.
We hope to add more information here as new resources are created, so be sure to bookmark this page and check for updates.
Finding a doctor
Use the database to find an expert in mitochondrial disease who may help you get diagnosed or can provide care.
Meet people living with TK2d
Hear from people living with TK2d to learn more about their experiences and the impact of this disease.
Finding a doctor
Use the database to find an expert in mitochondrial disease who may help you get diagnosed or can provide care.
Meet people living with TK2d
Hear from people living with TK2d to learn more about their experiences and the impact of this disease.
Patient advocacy groups
The UMDF promotes research and education for the diagnosis, treatment, and cure of mitochondrial diseases like TK2d.
UMDF.org
UMDF Organization Facebook Page
UMDF Patient Support Facebook Group
Join the TK2d support group by emailing margaret.moore@umdf.org
Learn more about upcoming UMDF events and patient resources
MitoAction works to improve the quality of life for people living with mitochondrial diseases and their families.
mitoaction.org
MitoAction Facebook Page
MitoAction international hotline:
- 1-888-MITO-411
- mito411@mitoaction.org
MitoPatients is an international organization that aims to improve the quality of life for people with mitochondrial diseases by fostering communication and collaboration across the world.
mitopatients.org
The MDA provides support and resources for people living with muscular dystrophy, amyotrophic lateral sclerosis (ALS), and neuromuscular diseases, such as TK2d.
MDA.org
Medical Equipment Assistance
Access Workshops
Understanding medical words & terms
Genetics Home Reference
Patient-friendly information about genetic conditions; provided by the US National Library of Medicine. Visit siteWhat Did My Doctor Say?
Aims to help health consumers and patients understand medspeak. Visit siteTalking Glossary of Genetic Terms
Created to help everyone understand the terms and concepts used in genetic research. Many definitions include images, animations, and links to related terms. Visit siteNational Society of Genetic Counselors Glossary
A genetics-based glossary. Visit siteSign up and stay informed
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In addition, all of our future communications will include an opportunity to opt out. WHO WE ARE Click here to learn more about UCB and our efforts to take on TK2d.